No, I really have no desire to learn how to tie a knot by "poking him in the eye." That is what I wanted to say to the Sport Rock...

Did you know? The definition of Aplastic Anemia: Aplastic anemia happens when your bone marrow stops making enough blood-forming stem...

One year ago, 17 people lost their lives to gun violence. Remember how Hadi didn't want me to watch the news because it made me too...

You know what is exhausting but extremely healing when it comes to grieving? Realizing why you react to situations in a certain way. I...

Did you know? For nearly 30 years, Aplastic Anemia and MDS International Foundation has provided financial support for research that...

We so have to make this happen. Be a part of getting my parents to TANGO. You can tell by the pictures it will be awesome beyond belief....

I watched "Beauty and the Beast" last night, the live action version. It was the first time in forever that I actually watched a whole...

Aplastic anemia can strike people of any age, race, and gender. But it is more common among children, teenagers and older adults. It is...

I have met Congressmen and Senators and even President Obama and Valerie Jarrett. I also have met Bono and The Edge (swoon). However,...

I decided it had been too long since I went to Jenny Cakes and so I made a plan to pick up some Hadi Cakes and then head over to the NIH....

Aamir and I went down to Winchester to celebrate our 9 year anniversary. It was freezing but beautiful. We stayed in an adorable cabin...

-Because he felt crummy. I loved watching Dr. Jill walk in and see the excitement on her face when she had a new joke to tell Hadi. It...

Hadi's awesome siblings and cousins know that we need more diversity on the registry and we also must find a cure for Aplastic Anemia....

I have decided that having Ashraf in your name automatically makes you a quality individual. There is my father, Ashraf Sufi and of...

Cicero. Midway. Dunkin Donuts. Yet, Chicago will never be the same without you, Shahinda Baji. I finally can feel my feet after the...

"Heya, Hadi, welcome Mommy's first cousin!" That is what Zakaria said when I let him know my warrior cousin, Shahinda Baji had passed...

There are few things I love more than a New York bagel. Watching Hadi enjoy one a few years back is a lovely image in my head. We went to...

Zakaria is cuurently in his counseling session and I am in the waiting room. I can hear his voice, shocking, I know. Luckily, I can’t...

Aamir isn't too hard to please. He requested Shoppers colossal donuts the first birthday we celebrated together as a couple. This year,...

I had breakfast today with one of my closest friends from high school and she commented that my parents haven't changed. I knew she...